Patient stories

What it looks like from the inside.

First-person accounts from people navigating Lyme disease. The diagnostic odyssey. The exhaustion of being dismissed. The relief of finding language for what is happening. The slow, non-linear work of healing.

In progress

Stories are being collected.

We are gathering real patient narratives with full consent before publishing. If you have lived with Lyme and want to share your experience here, we would like to hear from you.

Get in touch about your story